Thursday, October 15, 2009

October Update

C has been much improved the last 2 weeks, with markedly less congestion and gagging. Of course it;s all relative. Nearly every time she lays on her back for diapering she starts to hack and cough. Nearly every evening as we sit down for dinner she begins to fuss in her chair and retch. So we normally end up taking her back to her room while we eat. It's odd really, because she can be fine all afternoon, but the instant we pull out the chairs at the dinner table, C starts crying, goes all stiff arching her back and threatening to vomit. Back in bed, lying down, she settles down and is OK. The obvious explanation is that since she can't eat, C gets upset sitting there watching everyone else eat, and I think there is a lot to this. She's obviously aware that she's missing out on something. She clearly shows interest sometimes in wanting to taste things - of course whenever we try this she gags and spits most of it out, she just can't control her muscles to chew and swallow.

Yesterday we noticed a coin-sized bruise on C's lower back above her right hip. Most likely someone (Me?) banger her into the armrest while loading her into the wheelchair. Doesn't seem to bother her. C. was also in some discomfort last night (although she slept fine), had some brown in her residual and was grining teeth this morning. Think she needs a B.M.

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