Baclofen

Took C. to the neuro-developmental center for a doctor's appointment to refill her baclofen pump and adjust the dose. We were cutting things pretty close, with the alarm date on the pump only two days away. Her last dose adjustment was in October at 130mcg/day. Today we went up to 145mcg/day. We continue to increase the dose gradually, trying to achieve maximum reduction of tone in C.'s legs without compromising trunk stability or head control. While overall, her high-tone is much improved since last year, she continues to show intermittent extension in the legs and occassional bouts of tremoring, especially when uncomfortable. Head control and alertness seems fine so we continue to up the dose.